Jesy Nelson has shared heartbreaking news about her newborn twins, Ocean Jade Nelson-Foster and Story Monroe Nelson-Foster. In a social media post, the former Little Mix singer revealed that her twins have been diagnosed with spinal muscular atrophy type 1 (SMA1), a rare genetic condition affecting muscle strength and movement. Jesy expressed shock at the diagnosis and discussed how she has taken on the role of a caregiver to her twins.
SMA is a genetic neuromuscular disorder that impacts nerve cells controlling muscle movement. SMA1, also known as Werdnig-Hoffmann disease, is the most severe form and typically manifests in infants under six months old. It leads to progressive muscle weakness, making basic tasks like head movement, swallowing, and breathing challenging.
The condition is inherited when both parents carry a faulty gene, often unknowingly. Early detection of SMA1 is crucial for effective treatment. Identifying warning signs early can help families access support and interventions promptly.
Jesy, 34, and her fiancé Zion Foster, 27, welcomed their daughters in May following a challenging pregnancy. In an emotional Instagram video, Jesy shared the heartbreaking reality of her twins’ condition, acknowledging the impact it has had on her expectations for their future.
Initially, Jesy’s concerns were raised when her mother noticed the twins’ lack of movement. Despite initial reassurances due to their premature birth, Jesy persisted in seeking answers when her daughters struggled with feeding, eventually leading to the SMA1 diagnosis.
The singer emphasized the importance of early diagnosis in improving outcomes for children with SMA1. While there is currently no cure for the condition, there are treatments available to enhance the quality of life for those affected. Jesy now faces the reality that her twins may never walk or regain full neck strength due to the nature of the disease.