Jesy Nelson recently posted a heart-wrenching image of her eight-month-old twins smiling with nasal tubes, shedding light on their daily struggles. The Little Mix star shared that she has taken on the role of a caregiver for her daughters, Ocean and Story, who have been diagnosed with spinal muscular atrophy (SMA).
The 34-year-old singer expressed how challenging the past few months have been since receiving the devastating news about her girls’ health. SMA is a genetic neuromuscular condition that leads to progressive muscle weakness and atrophy due to the loss of motor neurons. In an emotional Instagram video, Jesy explained that the disease affects various muscles in the body, impacting movements, breathing, and swallowing. She also mentioned the possibility that her daughters may never walk.
Describing herself as a nurse for her daughters, Jesy highlighted the difficult tasks she has had to undertake, including assisting them with breathing machines. Following the video post, her partner Zion shared a new photo of the twins, emphasizing their resilience in facing challenges.
Jesy revealed that after extensive medical consultations, her daughters were diagnosed with SMA Type 1, a severe form of the disease. She expressed gratitude for the swift treatment provided by Great Ormond Street Hospital in London, emphasizing the importance of timely intervention as there is currently no cure for SMA.
The singer shared the relentless hospital visits and caregiving responsibilities she has taken on, acknowledging the profound impact the situation has had on her life. Despite the difficulties, Jesy expressed hope that her daughters would surpass expectations with the right support, aiming for remarkable achievements.
During her pregnancy, Jesy encountered complications, including twin-to-twin transfusion syndrome (TTTS), a condition that affects a percentage of identical twins sharing a placenta and can have serious implications. Jesy underwent emergency procedures and spent ten weeks in the hospital before giving birth prematurely at 31 weeks on May 15.
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